Helpful Tips for Living with a Brachial Plexus Injury / Erbs Palsy

One good thing to remember about your child's brachial plexus injury is that you are not alone. Unfortunately, roughly 2 or 3 children per every 1000 are born with a brachial plexus injury. Talk with your physician or therapist about finding a support group in your area.

There are also options available to you in getting monetary help for the therapy, doctor's visits, surgery, etc. The following are some government services available for your child:

 

-Call your county government Family and Youth Services office to sign up for state based Early Intervention services that will give your child free therapy if your child is evaluated to be more than 25% delayed. Click here for a link to the National Information Center for Children and Youth with Disabilities.

-Sign up for Medical Assistance (Medicaid or another name depending on your state of residence) which will cover anything your primary insurance does not cover. The law is "loop hole child law 355.14 in the PA handbook," a special benefit for disabled children. It is possible that the wording may vary from state to state or that your state may not even have the program.

-Sign up for SSI benefits based on your financial need.


Contact your insurance company:


 

-Your health insurance company may have a specialty group for "special need." They may also have a program to allow for going out of state for specialists not in your area. Working with the insurance company can be frustrating at times, but don't give up! Keep talking to different people at the company-one may know something that another does not.

-Look into the Neuro-Developmental coverage with your insurance company. This benefit is in certain states only, but it covers all types of therapy on top of what the insurance company already covers for physical or occupational therapy. Ask about the program and explain that your child has had a neurological injury since birth.

-Another helful tip is to break down your child's diagnosis into parts. For example, one diagnosis could be the brachial injury, another could be Horner's Syndrome (if your child has it), another could be hypotonia or low tone (if your child has it), etc.

  What is Brachial Plexus?

Living with Brachial Plexus

Is There Treatment Available?

How is the Brachial Plexus Injured?

Can Brachial Plexus Injuries be Avoided?

What Should I do If I am Concerned My Child Has Brachial Plexus?

 
  United Brachial Plexus Network
www.ubpn.org

Brachial Plexus Palsy Foundation
www.membrane.com/bpp